joebarlow
TFF member
Asperges and proud
Posts: 166
|
Post by joebarlow on Nov 15, 2009 22:41:21 GMT
I dont know if anyone saw a program on More 4 (Sky Channel: 139) but it followed 5 little kids with high-fuctioning Autism who spent 6 months creating, directing and perofmring thier own Musical, with the help of The Miracle Project (a theatre program created specifically for children with special needs).
The program was good but it was sad hearing the little kids stories. The program also followed the parents roles in thier kids lives as well. I loved the play it was brilliant, the kids had so much courage and were so brave to stand in front of a load of fully grown adults and to sing and dance and preform a musical and to such a standard that it would put many Hollywodd productions to shame.
I was waiting to watch this program all week as I had autism as a kid and when looking at old letters from schools, Torbay Hospital explaining tests they had done on me and other letters diagnosing me with Autism. At Primary School (Queensway Primary in Chlston) I was statmented and was partially deaf (I could only hear 30% of what "normal" people could hear and had to have Grometes put in. At the time my parents didnt know what to do when the docters had said I had Autism they considered pulling me out of mainstream primary school and putting me in a special program for disabled kids, but in the end decided that with the help of mentors and school help I should stay in Mainstream school.
When I did go lto live in Manchester in `94 my primary school then (St. Ambrose) helped out by continuing what Queensway did in provinding help with mentors, but 2 yrs later said that I had caught up enough that I didnt need any special help. In `98 I moved back to torquay to my dad and back to Queensway who put a careful eye on me but said I didnt need any more special help and with secondary school Cuthbert Mayne said I fitted in perfectly enough.
What I feel about this is that the wrong thing is being done with people with Autism and Goverment dosent pay enough due attention to any of this. 1 in 150 people in the world is dianosed with Autisum. I also had Aspergers which is also another kind of Autism and had a speech impedement. I feel that these types of kids need mreattention and care than they already receive I mean how many times on the news do you hear about kids with Autism, hardly a lot, alot of the air time on tv is dedicated to death and destruction and gloom but isnt that just trading one problem for another?
I hope I havent spoken out of term Dave or anyone else but it dose really `p` me off when I see kids being pushed about by parents when they need love and care and kindness and to be told what is wrong, what is right, what the difference is what happens if you do wrong or what good things happen when you do things right.
When I was a kid I probably was a little devil for my parents and I guess moving back and forth to Manchester and then back to Torquay 3 or 4 times a year didnt help but I got the help I needed and other kids with Autism needs the same I gto if not more.
|
|
Dave
TFF member
Posts: 13,081
|
Post by Dave on Nov 15, 2009 22:52:42 GMT
Not spoken out of turn but you touched a very raw nerve, my grandson is supposed to have this, I have seen the changes the drugs he is having to take are having on him.
It nearly ruined my relationship with my daughter, who has only just started speaking to me after a whole year the last time I talked to her about my grandson.
I have agreed to read a book my daughter has given me to read, still not sure about just how I feel about it all.
|
|
Dave
TFF member
Posts: 13,081
|
Post by Dave on Nov 15, 2009 22:59:25 GMT
Just checked the book title he is supposed to have Aspergers
|
|
joebarlow
TFF member
Asperges and proud
Posts: 166
|
Post by joebarlow on Nov 15, 2009 23:11:14 GMT
I think that people shouldnt keep feeling sorry and pity for people with Autism, I think pepole should accept them for they are and what they are born and live with but try and help them, guide them along point them in the right direction and pay that extra little attention to what they need, which si love and to be treated like anybody else, even if they dont have autism.
|
|
Dave
TFF member
Posts: 13,081
|
Post by Dave on Nov 15, 2009 23:18:52 GMT
Joe my grandson is supposed to have Aspergers, its not a case I feel sorry or pity for him, its more a case I'm not sure I believe half the kids doctors claim have it, really do.
The drugs turn then into zombies and that is what is concerning me at this moment in time.
|
|
joebarlow
TFF member
Asperges and proud
Posts: 166
|
Post by joebarlow on Nov 15, 2009 23:29:03 GMT
I do agree with you that drugs do tend to turn people into things there not. But maybe they may work in some cases, I didnt take any drugs when I was young, thats because they didnt have the drugs or treatmetns they have today but I didnt take any drugs just some coursess and i was fine but that was me and people do repsond to different courses of treatment.
|
|
Dave
TFF member
Posts: 13,081
|
Post by Dave on Nov 15, 2009 23:34:28 GMT
The changes I am seeing frighten me half to death Joe and as I said I'm very concerned but have to walk on egg shells or else things will blow up again.
I'm just not sure I believe it all and I'm having real problems getting my head around it, I'll keep reading the book and see how I feel when I get to the end of it.
|
|
joebarlow
TFF member
Asperges and proud
Posts: 166
|
Post by joebarlow on Nov 15, 2009 23:36:26 GMT
Good luck with it and remember you always have your friends like me if you need any help with it ok Dave.
|
|
Dave
TFF member
Posts: 13,081
|
Post by Dave on Nov 15, 2009 23:38:52 GMT
Next time I see you we can have a chat it would be good to hear you thoughts now you are older and gone through it.
|
|
joebarlow
TFF member
Asperges and proud
Posts: 166
|
Post by joebarlow on Nov 15, 2009 23:42:47 GMT
Yeah I`d like to do that, I may have some letters you might want to see etc, I`ll pm you.
|
|
merse
TFF member
Posts: 2,684
|
Post by merse on Nov 16, 2009 4:06:30 GMT
 "Aspergers" has moved on a bit since the Austrian Hans Asperger gave his name to the less well functioning, clumsey and socially inept kids of the period...................you know the ones who drop their drinks, won't pay attention nor take their place in a normal conversation but talk without listening. Now I know Autism is a whole different ball game and at the top end of the "spectrum" has dire consequences for sufferers, but in my opinion "Aspergers" has become a convenient "out" for parents of more demanding kids who simply won't put the extra time to them that is necessary. I see so many parents fobbing their kids off with hand held games to play with in the back of the car rather than hold a converstaion with them during a long journey. I see so many kids so wrapped up in their head phones they totally lack the social interaction skills so needed in life. I hear so many parents who "ask" their kids when "telling" wouldn't be a bad idea, let their kids control them rather than vice versa and as a result bring up annoying little turds who are a menace to other kids around them and a pain in the arse to other adults. I was at Market Road the other Saturday morning when some black stockinged, bob haired middle classy marched her son off to the Range Rover from the football loudly proclaiming that "his legs were very precious to her and that they weren't going to be broken in this awful place"  'There goes another potential Tarquin for Harlequins' I thought to myself, 'sling a bloody Bovril down him and make him catch the bus home' ;D The kid who lacks social skills is the kid who gets shoved in his bedroom or in the corner, the kid who struggles with his reading needs YOUR extra input, not dragging off to some doctor; and the kid who wriggles around at the table wants putting in his place and a lesson in table manners, not stuffing full of drugs that some pharmaceutical company has put medical practices under huge incentives to dollop out like smarties from the local shop. The kid who counts all the bricks in St Pancras Station might be autistic but he could also make a bloody good quantity surveyor, rap artist or pen and ink illustrator. Look for the positives in difficult and challenging children, you might just be encouraging a genius to shut up and be quiet just so you can carry on reading bollox in Harpers or some such other nonsey magazine.
|
|
Dave
TFF member
Posts: 13,081
|
Post by Dave on Nov 16, 2009 16:44:40 GMT
I could have written that post merse and its clear we hold much the same views on "Aspergers", and that is why I'm finding it so hard to deal with the situation with my grandson. I do need to find answers as when I saw my grandson for the first time in a year( due to fall out when I expressed my concerns) he was thin, looked weak and I did not even know he was home he was so quite. I did before I left go and see him in his bedroom, he was sat on the floor, playing a handheld game machine and looked lifeless and like a zombie. I'm told he has to remain on these drugs all his life, but I do not believe he should even be on them at all. He is thin as he no longer eats properly I'm told, yes before he went on these drugs he would somethings show real frustration and had a bit of a temper at times and would get bored a bit to easily, but if he was doing things he liked or was interested in, he looked like any normal kid to me. On the J.Vine show a while back this subject came up, one lady who was a Nanny for a young boy in London, told how she would spent time during the week taking him out to the parks etc. She said he was just like a boy should be at his age, but it all changed as at the weekends his mum and dad only wanted to hold dinner parties at the house and gave their son none of their time. They took him to the doctor and the boy ended up on these drugs. The nanny was crying as she said this happy and playful boy was now no more than a zombie. But if I believe it does not exist, why do doctors say it does and why do they put children some as young as four on drugs that make them look and act like they are the living dead. Below are three pages for the book that are used to help with the diagnosis, I have read them so many times and can come up with answers how to correct or stop half of what is claimed show the child has it. I can't find one that says to me I need to drug my child. O is the ordinary level expected for a normal child    |
|
|
|
Post by aussie on Nov 16, 2009 18:28:21 GMT
Did you know that some doctors get paid to promote certain drug companies products, slightly of beat but a dentist ( her name is Anita, was my daughters dentist ) in the Torbay area was charging patients ( children ) for a new experimental flouride based filling that was pink, this was only ever a trial that was meant to be free, well she got caught and rightly so ( scumbag )! So I wouldn`t put it past some doctors to push certain drugs through the system in order to get vastly wealthier than they already are! I`m not condeming doctors just suspicious and very untrusting of so called proffesionals, you can`t trust people now days just ask an m.P. to pay back expences! Their all at it!
|
|
merse
TFF member
Posts: 2,684
|
Post by merse on Nov 16, 2009 19:53:47 GMT
I could have written that post merse and its clear we hold much the same views on "Aspergers", and that is why I'm finding it so hard to deal with the situation with my grandson. I do need to find answers as when I saw my grandson for the first time in a year( due to fall out when I expressed my concerns) he was thin, looked weak and I did not even know he was home he was so quite. I did before I left go and see him in his bedroom, he was sat on the floor, playing a handheld game machine and looked lifeless and like a zombie. I'm told he has to remain on these drugs all his life, but I do not believe he should even be on them at all. I'm told, yes before he went on these drugs he would somethings show real frustration and had a bit of a temper at times and would get bored a bit to easily, but if he was doing things he liked or was interested in, he looked like any normal kid to me. I really feel for you in this situation Dave and my personal view is that to subdue people (whether young or senile) is really for the greater benefit of the "carer" than the "cared for"........................I used to see it in many of the old folk in the care home where my mother lived, and I've seen it in psychiatric units too. I'm not pretending for one moment that it is easy to have a demanding and highly active child, but when I read that "survey" you reproduced I look at it and shake my head as so many of the items listed can be found in so many kids and so many of those manifest themselves through those kids being ignored, de-stimulated or simply neglected....................and hey, doesn't number 23 sum up Nathan Abbey and a few other goalkeepers we have seen over the years? ;D Remember that all drugs have to be processed by the body and that they put huge strain on the liver and kidneys, bladder and spleen. Thankfully I have never been in the situation of having a behaviourally challenged child, but I have a grandson who was a right handful in his early years and I have my own theories on that; but at the end of the day my daughter and her husband have had to devote a lot of time and energy to get him on the right lines without recourse to drugs. I would however, expect any child of mine to show unusual behavioural traits if I constantly failed to give them the priority their young lives deserve; after all if a child craves the attention it is entitled to receive from it's parents but doesn't get it, then they are going to devise the means of achieving just that and who can be truly surprised if that results in attention seeking and anti social behaviour? I love nothing more than spending time in Anthony and Olivia's bedroom with Calvin too and becoming "one of them" for half an hour playing simple make believe games like using the bunk bed as a "Pirate Ship" or teaching Calvin simple ball skills ~ yes even before he can even stand let alone walk; he can do a wicked impersonation of Steve Woods !  |
|
joebarlow
TFF member
Asperges and proud
Posts: 166
|
Post by joebarlow on Nov 16, 2009 20:12:59 GMT
|
|
